Self Help UK

Myotonic Dystrophy Support Group

A national self help organisation offering information and support as well as a network linking families in their local area.

Who is this service for?
For families affected by myotonic dystrophy and others interested in their care and treatment, in the UK.

Contact Details

19-21 Main Road Gedling

Who to contact:
0115 987 0080, Helpline (for support and literature), any time
0115 987 5869, Office (for general information), Tuesday, Wednesday and Thursday, 9.00am-1.00pm

Website :

Other information

The Myotonic Dystrophy Support Group is a Registered National Charity and Company Limited by Guarantee. We give support to families with the condition and medical professionals. Informal area meetings are arranged for families and we have a National Conference.


Ramp Access, .

Ramp Access