Myotonic Dystrophy Support Group
A national self help organisation offering information and support as well as a network linking families in their local area.
Who is this service for?
For families affected by myotonic dystrophy and others interested in their care and treatment, in the UK.
19-21 Main Road Gedling
Who to contact:
0115 987 0080, Helpline (for support and literature), any time
0115 987 5869, Office (for general information), Tuesday, Wednesday and Thursday, 9.00am-1.00pm
Website : http://www.myotonicdystrophysupportgroup.org/
The Myotonic Dystrophy Support Group is a Registered National Charity and Company Limited by Guarantee. We give support to families with the condition and medical professionals. Informal area meetings are arranged for families and we have a National Conference.